General Chat

started a new thread,

i know a lot find other family members dont really get it

get it as in understand the pain,

my kids and hubby are fine , they all understand
but i had problems with some in work, and why i had time off,

last night i baby sat grandkids,
and whilst i put brave face on aches and pains it does show,

when daughter and her partner got home , he started his usual silly drunken chatter,
then went into a speech of 'he has to say how their little girl,
our darling grandaughter is just like me,
i just agreed and smiled knowing this was heading somewhere,
he says, shes such a drama queen,

well i asked him to continue in what way,
he said well i know you got your health issues but you do act like a drama queen and shes same

i did just change subject to daughter and tell her i was off then as it was late, and i would see her soon, told her not to worry bout his words,
but it does knock me when people think or feel i am making somethin out of nothing

I knew a lady once who could not understand others aches and pains, particularly in one case, the lethargy of acustomer with kdney disease whow as waiting for a transplant. Fate caught up with her though as she went down with motor neurone disease and was confined to a wheelchair. Never heard a word from her after about others imaginary complaints!

Julie Ann

Wouldnt wish this on anyone and no wonder they call it the invisible disability is it.

I am laid here in bed because dont have energy to do anything else, am finding these holidays hard as children especially Tiddler want to do things and I am trying but am ruining myself trying.

My sister didnt get it for a long time and then all of a sudden it clicked with her how bad it can be.

I still dream about theday when I will be free of it all


d xx

Jean
I know someone who will go on about her woes but ignore people when they have something wrong.

Suppose we are all different and I now tend to stick to talking topeople who have fibro about fibro as they can understand more.

Julie, and Dawnie, I know what you mean.

My o.h. and his son still think I am being lazy or making a fuss over nothing, and o.h. thinks if I go to bed at normal time, ie. 11 - 7 or similar I would be ok. However bad I feel and however late I get up I am expected to cook dinner and wash up after.

When oh when will he get it into his head that it doesn't matter what time of day or night I go to bed, I won't wake up feeling refreshed and well. I have the aches and pains and stiffness despite a memory foam mattress, not to mention the poor sleep as in not reaching the right sort of sleep levels which is a part of fm and cfs. I would also have to contend with his dreadful snoring, him getting out of bed a couple of times for the loo (he was supposed to go for prostate test but because it wasn't a local apptmt he wouldn't go), him suddenly shouting out or nudging me, the alarm going off if he is due in work and then having to wait for three songs to be played on the cd player before he will make a move, or the alarm on the clock going off as a reminder, which is the most awful noise you ever heard. If I can get back to sleep after all that, fine, but most of the time I am on edge by then and all my problems run through my head and I can't sleep for ages.
Hence me staying up till 5 ot 6 am depending on when he is likely to get up, and trying to sleep during the day. Then I have to contend with dustmen coming one day,(bin lorry reversing into close till it stops at the end close to our bedroom window - only small verge in front of house) dustbin cleaners visiting neighbours the next, milkman stopping under window to tally up cos we are at end of cul de sac, and to top it all neighbour revving up his diesel jeep for several minutes or leaving it running in winter under the bedroom window which is usually open a smidgeon for air, the fumes wake me if the noise doesn't, oh and his dog barking on a Saturday morning as it runs round the close while he cleans his jeep, his car, his Dad's car and Dad doesn't speak he shouts, and his Discovery truck with music going and the dog being shouted back every few minutes! When the neighbour has her grandson to stay in the holidays he shouts all the time, never been taught to speak at a normal level, heaven help his teacher now he is at school.

Julie, your s.i.l. to be needs taking down a peg or two, shame your daughter doesn't speak up for you considering all you do for them. It would be nice if my o.h. spoke up for me regarding his son's attitude but they side with each other and just leave me to it.

You are a better person than me Dawnie, as I have wished the illness on both of them, maybe then they would understand then. I also have osteo arthritis in both knees and my ankles and neck and shoulders but am still expected to vacuum and do anything that needs doing, he even wonders why I don't clean the car, as I use it!!!!!

Lizxx

n

Anyone see This Morning today was item with Dr CHris on under active thyroid and he said he wondered how many ME.CFS/Fibromyalgia sufferers had it but all symptons were put down to their Fibro etc.

Oh I wish I could find a new dr who understood it all but havent a clue about Drs round here.

I have had so many blood tests for thyroid problems and nothing showed up Dawnie, so I don't think mine is misdiagnosed, but who knows?

So much confusion over the three illnesses, if they researched and treated in one place maybe they would get more info and more correct diagnoses and then more help for sufferers.

Lizx

Hi Julie Ann,
Hope you're feeling better. It took doctors 5 years and many tests to diagnose fibromyalgia. I'd never heard of it but when I read up about it I couldn't understand why it took them so long as all my symptoms were listed! I had my tonsils removed last year at the ripe age of 62 and while I was recovering from the anesthetic I realised for the first time in a few years that I was free from pain - apart from the sore throat!! It was so nice to relax in bed with no aches and pains. I have every sympathy with all sufferers and I think other people who don't suffer find it hard to understand because it's not a visible complaint. They can't feel your pain so as far as the're concerned it doesn't exist. Best wishes to all sufferers.

hi all,
thanks all for keepin thread going,

im feeling a bit better today,
get quiet low lately,
i told hubby i dont think these anti depressants are working proper , the other day, !!
cos i feeling depressed,

last few mornings while we had the easter hols, i was just awake laying in bed, debating whether to get up or just stay there for a bit longer, my back was in half, and is most of the night,
and ribs,
eventually i got up, not late,
hate staying in bed long , feel like waste of day,
but get fed up of house,

daughter did tell her partner to pack it in other night when he was wittering on,
she tells me ignore him,
she did tell him off for another rather personal comment that he made , that would have got any other guy a smak across the chops im sure,

he sees it as just a joke, well tahts how he explains it away

nudging for Emma

Gentle nudge please

Thank you
xx

nudging