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Just to remind you again......PLEASE READ
| Profile | Posted by | Options | Post Date |
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Caz Nr Heathrow | Report | 24 Jan 2007 22:08 |
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Jennifer pm'd you Caz |
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AnninGlos | Report | 24 Jan 2007 22:04 |
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Jennifer, maybe not everyone will understand the acronyms. I knoow SAD is Sudden Adult Death, but don't know what CRY is. could you spell it out please. Ann Glos |
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Researching: |
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Gillian Jennifer | Report | 24 Jan 2007 22:04 |
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Sorry-Cardiac Risk in the Young. Once they reach adult hood it is SADS Sudden Adult Death Sydrome and after 35-unexpalined death-which is shocking-Stephens was unascertained pointing to SADS-which tells me nothing-50-50 chance his siblings have it-like a death sentence-and waiting for the tests is a pateint thing-almost 11 months and all we have had is an ECG-waiting heart scans-and what ever follows. Stephen (MY SON) was 34. |
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Gillian Jennifer | Report | 24 Jan 2007 21:56 |
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about SADS and CRY - apparently they have doubled in size-that means twice as many people as last year helping spread the news how important it is to get your children screened-but the government has not appreciated the desperate need for this to be done on every child, in every school-if we can save one child's life, save one family the devestation of losing a child, then a job is done-please support this good cause-and help us beat death in the young-just by spreading the word of what this actually means is a help-then perhaps the Government will fund this screening-until then we have to raise both money and awareness to this soul destroying killer. |
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